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HORMONAL AND METABOLIC DISORDERS 

American Porphyria Foundation
Online:  www.enterprise.net/apf
PO Box 22712
Houston, TX  77227
Tel:  (713) 266-9617 

American Thyroid Association
Online:  www.thyroid.org
Montefiore Medical Center
111 East 210th Street
Bronx, NY 10467
Tel:  (718) 822-6047
E-Mail:  info@thyroid.org 

Association for Glycogen Storage Disease
PO Box 896
Durant, IA  52747
Tel:  (319) 785-6038 

Children’s PKU Network
Online: www.kumc.edu/gec/support/pku.html
1520 State Street
San Diego, CA  92101
Tel:  (619) 233-3202
E-Mail:  magola@gte.net 

Cushing Support and Research Foundation
Online:  http://csrf.net/
65 East India Row
Boston, MA  02110
Tel:  (617) 723-3674 

Endocrine Web
Online:  www.endocrineweb.com 

Late Onset Tay-Sachs Foundation
Online:  www.neurooas.mgh.harvard.edu/lots/main.html
1303 Paper Mill Road
Erdenheim, PA  19038
Tel: (800) 672-2022
Tel:  (215) 836-9426 

National Adrenal Diseases Foundation
Online:  www.medhelp.org/nadf
505 Northern Boulevard
Great Neck, NY  11021
Tel:  (516) 487-4992
E-Mail:  nadf@aol.com 

National PKU News
Online:  www.pkunews.org
6869 Woodlawn Ave NE
Seattle, WA  98115-5469
Tel:  (206) 525-8140
E-Mail:  schuett@pkunews.org 

National Tay-Sachs and Allied Diseases Association, Inc.
Online:  www.ntsad.org
2001 Beacon Street
Brighton, MA 02135
Tel:  (800) 906-8723 

Office of Rare Diseases
Online:  www.rarediseases.info.nih.gov/ord
31 Center Drive
Bethesda, MD  20892
Tel:  (301) 402-4336 

The Thyroid Foundation of America
Online:  www.tsh.org
Ruth Sleeper Hall; RSL 35040
Parkman Street
Boston, MA  02114-2698
Tel:  (800) 832-8321
Tel:  (617) 726-8500
E-Mail:  tfa@clark.net